Posted in Guest Blog Posts

Womb With A View

Posted in Guest Blog Posts

Free at last, free at last, oh goody this gal is free at last!

Those words and that exact sentiment, was the rhythmic jingle that hummed in my head on that glorious day when I sold my retail business. YIPEEEE…for twelve years I owned and ran the daily operations of a gourmet food and gift shop( in Boca Raton, no less). Working in retail for twelve years has the equivalence, toil-wise, of 30 years of mainstream-living… ‘breathing’ the business with nary a day off. Never ever extra time for thinking of anything other than “the business”–ever! So, when the moneys and keys were exchanged, I became deliriously giddy with my new found freedom  I felt like MTM throwing the hat in the air!! My mind and I started to become re-re-re-acquainted; deep and great thoughts that did not include the $ price per pound of thousands of bulk products. Ahhhhh–but…huh…what’s that lump in my lower right belly area? Oh, maybe it’s just my digestion slowing down with a package of something lodged! hmmmmm…or… or just mmmmaybe it’s…??
Oh, don’t tell me that I am being stricken/punished for being so fricken-fracken happy with my new “life”? Heaven forbid that I should have 4 lousy weeks of leisurely reading the NY Times–nooo!!
Okay, here comes the Fellini movie, starring yours-truly and the “bump” that will cause my waning years to be pushed up a few decades: NOW!! 
Oh gosh my thoughts are not at all quiet–they scream at me ~~ silent for all others.
It is time to check in with a doctor.
Making an appointment to see the gynecologist was a bit foreign as–”I don’t do doctors!” The last time that I had been splayed out in an examining room, was 16 1/2 years earlier for the joyous birth of my second child. I went to the appointment with such angst and trepidation, and for many more reasons than just the “lump-bump”.     
“Okay, ms Perkins, you have a fibroid…get dressed and come  into my office.”

I only had a fibroid!–thankyou, thankyou thankyou.  As I dressed, there were tears streaming  and I made a bargain (with???) that I wouldn’t be so damn happy…poo-poo-poo, after all. 
Hey, what is a fibroid anyway??

Little did I know that those tears would flow again and again, but not from joy, oh no, but rather from sheer and utter frustration.  It turns out that a symptomatic fibroid is not, just an innocuous “bump”.  Sitting in the doctors office for our face-to-face meeting, she spoke, “That walnut size lump is a fibroid, take this home (handing me a pamphlet) and read it! Any questions?”  At the time, I was relieved (no cancer) and pretty much question free.

The educational (ha!) pamphlet, so generically given, was of cartoon women (with cartoon husbands) of every ethnicity, happily having a hysterectomy!!! It was at that moment that I was convinced that I’m in a Fellini movie ~~ a surreal nightmare that is whisking me along in a role that I wish no part in ~~ hysterectomy, forsooth!!
Good heavens people,  I don’t even take aspirin, for geesle-pete! And besides, I LOVE my uterus…do you hear me?  You are not taking it. You are not getting this ol’ gal on a gurney, fill her with drugs, and wheel her to an operating room…only to sacrifice her like a lamb and yank out her perfectly lovely uterus because of a benign bump!! This is war I tell you, WAR…and I will protect my uterine territory, forever!
With that declaration of independence, the priority and my subsequent steps would be to educate myself and then visit with another doctor. I must say that the single most depressing part of this 8-plus year journey, were the doctors. 
Eight doctors, and all but one ever saw me as a person. Each of those 7 doctors, each of them, wanted to perform a hysterectomy!! But, that was NOT what I wanted…why were they NOT hearing me express that, “I will not be cut open”!!! 
Each doctor had their own agenda, each used their own creative tactic to (what they had hoped)  lure me to the scalpel-table.

One doctor promised me tons of Valium to sooth the angst of the dreaded blood-n’-guts scene that a hysterectomy would bring about. NO!
One doctor wanted to preserve the uterus (no guarantees) with a simple myomectomy. I would be out of commission for at least 6 weeks.NO!
One doctor promised me that I could participate in a clinical trial with a drug that suppresses progesterone, and the growth of the fibroid (possibly shrinking it). He promised that the double-blind study would not be “blind” for me…wink wink wink.NO!
One doctor promised me lupron, with one condition…you guessed it, hysterectomy!!!NO!

Six years passed and my symptomatic fibroid was growing like a July melon in a well-firtilized field…ready for picking.
MY resolve to save the uterus was not weakening and the plan (now) was to go on lupron.  This hormone agonist could quite possibly jump-start my entry into menopause (fibroids shrink with no hormones feeding them). 
Lupron was amazing for me ~~ the fibroid shrank ~~ I was pleased; the doctor was pleased.
BUT  lupron has a life span, and I had been on it longer than allowed. Stopping lupron would mean that I was back to square one, with regards to the fibroid growing back to its tremendous size ~~ and, you guessed it ~~ I needed another doctor!!!

This doctor tried to frighten me with the cancer-scare tactic, but I had this “role” for too long…I would have been dead a long long time ago if that were true. And again, the prescription for lupron was written, but with one caveat…that I seek a definitive treatment, not just lupron.
It takes a long time for a new procedure to percolate in the medical system, but with internet searching I stumbled upon focused-ultrasound. Why oh why, had no doctor ever told me of this non-invasive measure??!!

I have written, in much deserved glowing terms, about Dr. LeBlang…but, I can never write enough about this marvelous woman. Her technical expertise is world renowned! But what truly struck me the most, is her demeanor of kindness, compassion, her gentle approach and her willingness to really LISTEN, and that what I say has merit, that I matter.  I finally found a home in her office. FINALLY!! And today, because of her talent, compassion, and stoic moral compass, I’m free to be!!

You see, everyone of us matters and doctors have the power to befriend and strengthen the lives of each and every one of their patients…one-by-one changing the world…one heart at-a-time.

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About Wendy

Wendy is a patient advocate for Fibroid Relief. She had fibroids and was treated with Focused Ultrasound.

4 Responses to Womb With A View

  1. Ellen Lerner says:

    Wendy — As you know, I am thrilled for you that you found a non-surgical solution! No surprise, of course, that western medicine is in some ways a mess, treating rather than preventing, etc. Still, there are good docs out there — in my own obgyn’s office there is an osteopathic physician board certified in obgyn AND in holistic medicine, totally focusing on holistic women’s health, fertility, etc. Still, there is a benefit to some of the tests (western though they may be) that can catch things. Please take good care of yourself in all ways!

  2. admin says:

    ellen..i hear you and i thankyou!! i am pro-active and you are absolutely correct, there are beneficial tests….with that said, finding a doctor that meshes with you, is equally as important xxxxxx

  3. I’m glad you are still doing well, Wendy- You were willing to br patient and persevere- we have to be pro-active in our lives & health-

  4. Pingback: Womb With A View FibroidRelief org | Weak Bladder

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