Posted in Guest Blog Posts

Who’s Fooling Who!

Posted in Guest Blog Posts

Two weeks ago my ‘Google Alert’  presented me with an article from “The Times Of India.” I was informed that the 26th annual meeting  of the European Society of Human Reproduction and Embryology, held in Rome,  had disclosed an exciting (new) study with some rather good news for fibroid sufferers.  So as not to editorialize or confuse the issue, I shall quote, verbatum, exactly the text that appeared when I ‘clicked’ my new ‘Google Alert’!
And I quote ~~
An expiremental ‘morning after’ pill could free millions of women from the misery of uterine fibroids, new study suggests.
The drug, ulipristal acetate (UPA), provides an effective non-surgical treatment for the common womb condition that can lead to pain, heavy periods and infertility, say scientists.
UPA belongs to a relatively new class of drug, the selective progesterone receptor modulators or SPRMs.
It is currently used for emergency contraception, and acts be blocking the progesterone receptor and hence ovulation (release of the egg).
Recent research has shown that progesterone also plays a role in the development of uterine fibroids.
“Both  the fibroids and the surgical interventions commonly used to treat them can cause significant fertility problems and we wanted to see whether fibroids could shrink and surgery could be avoided by using an SPRM,” Dr. Alicia Armstrong said.
Those taking UPA had reduced total fibroid volume and reduced bleeding, with those taking the higher dose (20 mg. vs 10 mg.) doing better. The action of the ovaries was not impaired, and neither were there any serious side effects.
“The results of these trials are convincing and lead us to conclude that UPA is an effective non-invasive treatment for fibroids that can help maintain fertility in women whose only option up to now was to have surgery,” Doctor  Lynnette Nieman, Principal Investigator on the NIH trials, said.
Wow! Really… I do not even know where to begin except by stating the obvious, and that is that I am truly truly delighted ANY time there are expirements or studies or money$ spent on erradicating these ferocious-fiendish-fibroids!! I am!
But people(!!)  ~~  this information was known(!!) ~~ all of ‘it’ was known since 1980, when France first synthesized this drug and labeled it a medical abortion. Ever hear of RU-486??? Well that is precisely what this NEW drug with NEW studies is. The difference being;  it is 10-times weeker and has been repackaged and relabeled so not to include ‘medical abortion’ as its purpose…but it is essentially the same!!
The same I tell you!!  I know this because I tried and I tried and I tried and I tried to get on mifepristone (it’s ‘other’ name)!!! In vein, I might add…in vein.
Since 1980,  there have  been only 3 studies (three studies only!) as to the POSITIVE effects on volume decrease (of fibroids)  that mifepristone, UPA or RU-486 have.
I know this, as  I tried (I literally begged and cried and phoned and bloodied my head from hitting the proverbial ‘brick wall’) to get in the ongoing study.
I had researched this drug AND the positive outcomes were remarkable! It was indeed a viable answer for women (like myself) to remain ‘whole and intact’ and resume a normal life, until menopause would then shrink  ’the evil-doers’ !!!!  No such luck for me, they would not let me in…[sigh]!
I also tried to get on the “Compassionate Use Program”. (As a side note, it turns out that RU486 shrinks ALL kinds of progesterone receptive tumors…both cancerous and non, and people were being CURED!!)
SO!! Filling out all of the forms, and then speaking with the the ‘higher-ups’ in the NOW Foundation and the FDA (because RU-486 was/is a controlled substance, like heroin you can go to jail!!) I finally had my phone call meeting…the answer was… NO!
I was demoralized devastated devalued defunked!!! OMYGOODNESSGRASCIOUS, just because this drug, if dosed in amounts 10X what I needed would/could stop the egg from attaching to a uterine wall, well, that meant  that I and the rest of the fibroid-riddled women were sh♥t-outta-luck!!!!
 Tooo bad for us, because this drug already had it’s ‘scarlet letter’ and it was all wrapped up in the politics of ‘women-have-no-choice’, and THAT (my friends) was truly WHAT was going on!!!! Disgacefull on every level!!
I fought a valiant fight (for years) to try to convince (through logic and reasoning and a bit-o-screaming!) that I was not using this as a medical abortion…but it just did not matter one stinking bit!
‘My whole big fat fibroid story’ could fill a novel (well maybe a novelette), but I am done talking about it for today!!
Just know that I am soooooooo very happy that this particular drug has distanced itself from ‘the bad press’ of being an abortion pill…because, you know what… it works, I know! 
AND,  it is yet another CHOICE FOR WOMEN in the (now growing) arsenal of weaponry to erradicate these ferocious-fiendish-fibroids!!
OH YES!!! One more point for Team-Women and no points for Team-Fibroid! YEA!! YEA!!! ♥♥

Share

About Wendy

Wendy is a patient advocate for Fibroid Relief. She had fibroids and was treated with Focused Ultrasound.

Leave a Reply

Your email address will not be published. Required fields are marked *

*

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <strike> <strong>